I hear a lot of patients say stuff like this! TBH like…it is our job, and we expect to do stuff like that for our patients when we come in in the morning/night! I’d MUCH rather have a patient who needs a lot of help but is pleasant than an asshole who hardly ever asks for anything, haha! TuT But I totally get the “agh I’m bothering everybody why can’t I just stop” vibe, hgh. Uh, let’s see.
The biggest thing you can probably do, especially if you’re self-conscious about using the call light, is to try to cluster the things you need together. if you notice that you’re cold and you need an extra blanket–do you need a top-up on your water? Some crackers? A new ice-pack? We do a lot of steps in a shift and a lot of the time many of the things you want are gonna be stored close together, so it’s easiest to grab all of them at once.
That said, if you’re being pretty polite and pleasant, treating us like human beings and doing your best to work with us, and your nurse still acts like an asshole to you? Your nurse is just an asshole. TBH the fact that you’re thinking about this makes you the top percentile of patients and I would love to take care of you if you ever ended up in my hospital, haha. ^u^
You would think it wouldn’t be because literally you are liking or reblogging others stuff. Should make them feel good right? Only a little bit, extroverts need the comments, the asks, the whole interactions between others to keep them doing what they are doing. We live off of others feedback, without it we are lost at times.
It’s awkward to even talk about it sometimes, where we do get self conscious of how others perceive us because sometimes we are a little ‘too much’ to handle.
Let us know. We are humans too. While we may be very social, we get that there are times to just be by yourself in your own world.
Give us a chance though. We can provide hours of mindless entertainment and go on adventures together. We can be the best friends you never have to meet in person lol.
Someone: “I want a cat/rabbit/other animal that will be super openly affectionate, go for walks, play fetch, not mind being handled rough, never be shy, and also I don’t want it to claw me or the furniture(so I’ll probably get it declawed) and I don’t want to ever clean a litter box or cage.”
Me: “Hey there’s this great new type of animal you might be interested in:”
Someone: “I want a dog but I don’t ever want to take it for walks or exercise it very much or let it outside and I want it to be fine with being left alone for longer periods of time and also never bark.”
Me:
Someone: “I want a cat or dog but I want to only feed it a vegan diet.”
Me:
Someone: “I want to have a pet but I basically never want to interact with it.”
Me:
Someone: “I want to get my kid a cute pet for Easter/Christmas!”
Me:
Get a pet that fits your needs. Don’t get a pet then try to force it to fit your lifestyle. Just because you saw a person walking a rabbit once doesn’t mean you can expect a rabbit to just be a dog. Just get a dog!
When I was younger and more abled, I was so fucking on board with the fantasy genre’s subversion of traditional femininity. We weren’t just fainting maidens locked up in towers; we could do anything men could do, be as strong or as physical or as violent. I got into western martial arts and learned to fight with a rapier, fell in love with the longsword.
But since I’ve gotten too disabled to fight anymore, I… find myself coming back to that maiden in a tower. It’s that funny thing, where subverting femininity is powerful for the people who have always been forced into it… but for the people who have always been excluded, the powerful thing can be embracing it.
As I’m disabled, as I say to groups of friends, “I can’t walk that far,” as I’m in too much pain to keep partying, I find myself worrying: I’m boring, too quiet, too stationary, irrelevant. The message sent to the disabled is: You’re out of the narrative, you’re secondary, you’re a burden.
The remarkable thing about the maiden in her tower is not her immobility; it’s common for disabled people to be abandoned, set adrift, waiting at bus stops or watching out the windows, forgotten in institutions or stranded in our houses. The remarkable thing is that she’s like a beacon, turning her tower into a lighthouse; people want to come to her, she’s important, she inspires through her appearance and words and craftwork. In medieval romances she gives gifts, write letters, sends messengers, and summons lovers; she plays chess, commissions ballads, composes music, commands knights. She is her household’s moral centre in a castle under siege. She is a castle unto herself, and the integrity of her body matters.
That can be so revolutionary to those of us stuck in our towers who fall prey to thinking: Nobody would want to visit; nobody would want to listen; nobody would want to stay.
XI's Archived Tumblr Blog 